Resume

Bobby Zhao
Design Strategist

WeCare

WeCare

One-stop-shop for transitioning caregivers

Centralize and personalize family caregiver resources to provide quick, accessible, and community-oriented support.

Centralize and personalize family caregiver resources to provide quick, accessible, and community-oriented support.

Time

Jan. 2024 - May 2024

Team

Asha Wills, Bobby Zhao, Emma Stone, Yimei Hu

Responsibilities

Design Research,User Interview, Ideation, UIUX

Background

Caregivers to aging patients with degenerative diseases experience constant burnouts due to limited knowledge and access to care resources.

The WHO reports 4.5 billion people lack access to essential health services.

53 Million

people in the US provide unpaid care to either an adult or child

AARP

24-41 hrs/week

is the average time caregivers spend in providing care for family members

AARP

84%

of caregivers report needing more information on caregiving topics

AARP

Stakeholder Mapping

Stakeholder Mapping

1

High touch - Caregiver

Debra has the most interaction with Edward (care receiver), her primary concern with the most influence over her behavior


2

Medium touch - Care Team

A robust care team and Debra’s other family members interact with her on a weekly basis


3

Low touch - Institutions

Debra’s decisions and experience are influenced by several institutions with systemic influence but low touch 

Problem Discovery & Definition

36

Detailed

Survey Participants

14

In-depth Caregiver Interviews

540

Minutes of

Insights

Survey

Prior to in-depth one-on-one interviews, we designed a detailed survey questionnaire to provide us with preliminary understanding of the family caregiver profile. We refined our interview guide based on the findings in this survey.

Interview Design

In-depth Interview Guide


  1. Becoming a Caregiver

  • Can you tell me more about when you first became aware that you provided regular care for a loved one? What was that like?

  • What things did you have to learn to provide care better? 

  • What were the sources you used to learn?


  1. Care Team

  • Do others help you take care of this person? 

  • What was the process like to divide up the roles?

  • What is the dynamic across everyone supporting? 


  1. Challenges & Joy

  • What does your typical day look like?

  • What are/were the most challenging parts of providing care for your loved one? 

    • Changed relationship?

    • Impact on personal life? work/life balance

  • How did you tackle these challenges?

  • What are the parts of providing care for your loved one that bring you joy?


  1. What if

  • If all your caregiving responsibilities magically disappeared/were taken care of, what would be the first difference you noticed in your life?

  • Resources that you wish to have but you don’t have yet

  • Resources that you wish you had known before

  • Coping strategies for mental stress

 

In-depth Interview Guide


  1. Becoming a Caregiver

  • Can you tell me more about when you first became aware that you provided regular care for a loved one? What was that like?

  • What things did you have to learn to provide care better? 

  • What were the sources you used to learn?


  1. Care Team

  • Do others help you take care of this person? 

  • What was the process like to divide up the roles?

  • What is the dynamic across everyone supporting? 


  1. Challenges & Joy

  • What does your typical day look like?

  • What are/were the most challenging parts of providing care for your loved one? 

    • Changed relationship?

    • Impact on personal life? work/life balance

  • How did you tackle these challenges?

  • What are the parts of providing care for your loved one that bring you joy?


  1. What if

  • If all your caregiving responsibilities magically disappeared/were taken care of, what would be the first difference you noticed in your life?

  • Resources that you wish to have but you don’t have yet

  • Resources that you wish you had known before

  • Coping strategies for mental stress

 

Interviews Insights

  1. Getting effective strategies to cope with receiver’s changing conditions is difficult due to:

  • Non-responsive

  • Not personalized

  • Research-intensive

“I can't get any other for profit or nonprofit organizations around or to return my phone calls or email inquiries. They have more demand than they do available employees. And they probably don't make as much money off  of some of them like me rather than a contract with the state to run a group home for five or 10 people.”


Rachel

“I reached out to the Alzheimer's Association about tips on what to say and how to respond to her. And in the  end, I didn't have a lot of answers. They referred me to some, like help groups, you know, for caregivers, which I never tapped into. I've never had time.




Ann

“Support groups is how I started really learning. And then I also just was on Instagram a lot trying to find different people who specialized in Alzheimer’s dementia, trying to figure out different patterns that my mom has and how to deal with them.





Denine

“They (Area Agency on Aging)  have a caregiver support program available. I haven't really been able to take advantage of that yet. Just because getting in touch with the  coordinator has been really hard...”



Eugenia

“My neighbor's mother had some form of dementia. And she would talk about her husband’s stories… like totally kind of like mine. Sure. So every situation is a little bit different. But it’s help to know how others have been dealing with it.”


Ann

“I'm not trying to sound like a hero or anything, but once you've gone through it, it's just so nice to be able to help people that are in the same boat as they are in their community or in their workplace”



Rebecca

  1. Caregiving support services are lacking in quality, accessibility and affordability

  • Availability Inconsistency & Inflexibility

  • Lacking of Training and Experience

  • Lacking of Affordability

  • Incompatibility

“They're it's either a second job for them or they're a college  student and the two college students they they'll they'll lie to you, they lied to me and they'll lie to you  about schedule and their availability, so then it just becomes impossible to schedule them.”


Rachel

“there's a lot of unpredictability with the worker schedule, and then not show that  day you might get three or four different caregivers in a week, which really isn't ideal for someone frail and compromised. And so they don't have the experience of working with that  individual.”


Jodi

“Some of them have minimum amount of hours that they'll do per week. It’s really  hard trying to find somebody with that low of hours. Also there's a lot of people who just aren't experienced. They say that they are or they've worked with them, but they really aren't. They may have  worked with someone with dementia, but that doesn't necessarily mean that they're trained 

Denine

“The specific difficulty was that whether it if it's a scheduling conflict or mismatching personalities, or anything that's related to, I guess, the difficulty in retaining like a long term caregiver to

help is the need or doing I think the biggest thing”


Nicole

“We didn't know how long we would need the help and it was going to be very expensive. Like it was like $55 an hour for the caregiver through the agency. ”


Ann

“Even if we had like 10 grand coming in every month, good luck hiring it. I mean, it's just like even if you do have the money, you know you have to pay a lot to get quality semi quality care.”


Rachel

  1. Caregiving team is hard to coordinate

  • Hard to update all caregivers as conditions change

  • Game of telephone to relay information between family and medical team

  • Medication management is extremely anxiety-producing for people with no prior experience 

“Lots of different doctors, but everyone it all everything's connected everyone's can get a hold of each other's information. So that way if the cardiologist puts them on something, gives him a medication. The kidney doctor knows and it's like, Oh wait, no, he can't have that because that will affect his kidneys. Everybody's connected …”


Monique

“Yeah, I think I think they need good primary care at home but it's just it's a hard model model financially for hospitals to invest in like they invest in hospital at home but they don't invest in primary care at home.



Jennifer

“...Having to have the responsibility to [administer] end of life pain management … still to me like feels like this weird fantasy out of body experience because I felt like I just had to completely disassociate in order to perform



Becca

Medication Management: This became a huge issue. Months before going into assisted living where they took on medication management, I had to help my mom take her meds somehow, from a distance.”



Ann

Solution Development

Design Guideline

01

Must integrate seamlessly into the user's daily routine.

02

Must lessen the user's cognitive load.

03

Must be cost-effective and affordable

Ideation

Product Goals


We began product conceptualization with the brainstorming and affinity mapping of product feasibility and desirability goals.

Storyboard

Extension

Engagement

Enticement

User sees WeCare poster at key clinic waiting room and is handed WeCare journal

User scans QR code to download app or visits website

User enters information to set up profile

User browses through personalized caregiving guideline and community knowledge shares based on matching algorithm

User experiences frustration in a specific caregiving task

Visitor hunts for key phrases on WeCare, eyeing possible remedies

User browses through solutions/strategies posted by other family/professional caregivers (personalized knowledge transfer)

User tries out and fine tunes different solutions. 

User documents each solution experience and strategy variance based on the modification

User’s modified solution is added to the online repertoire as a solution variation

The Journal Packet

Offers a high-level overview of caregiving, equipping them with guiding and reflective questions around 5 key areas:


  1. Finding Care

  2. Financing Care

  3. Coordinating care 

  4. Planning Ahead

  5. Caring for Yourself

The Digital Twin

Exploration

Journal to Digital

Navigation

Problem-specific

Resources

Execution

App to Journal

Engagement

Social Connection

In-depth

information hub

Personalized

Results

Applicable

Materials

Dynamic

Community

Exploration

Journal to App

Wecare journal’s digital twin provides a bridge to additional in-depth caregiving resources all in one place

Wecare journal’s digital twin provides a bridge to additional in-depth caregiving resources all in one place

Wecare journal’s digital twin provides a bridge to additional in-depth caregiving resources all in one place

Navigation

Personalized Directory

Personalized curation of caregiving suggestions and resources based on user profile
Personalized curation of caregiving suggestions and resources based on user profile

Problem-specific solutions explored by fellow caregiving users

Problem-specific solutions explored by fellow caregiving users

Action

App to Journal

Top community inputs are featured in the next version of wecare journal, validating users’ contribution

Top community inputs are featured in the next version of wecare journal, validating users’ contribution

Applying community validated materials and practice to users’ own caregiving workflow

Applying community validated materials and practice to users’ own caregiving workflow

Engagement

Community Connection

Gamification encourages user participation and recognizes caregivers’ value

Gamification encourages user participation and recognizes caregivers’ value

Community-centric engagement promotes connections and minimizes social isolation

Community-centric engagement promotes connections and minimizes social isolation

Delivering to Caregivers

Delivering to Caregivers

Partner with nonprofits, employers, and health insurance companies to get wecare journals into the hands of family members transitioning into caregiver roles for an aging loved one.